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  <titleInfo>
    <title>EU health data centre and a common data strategy for public health</title>
  </titleInfo>
  <name type="personal">
    <namePart>Martins, Henrique</namePart>
    <role>
      <roleTerm authority="marcrelator" type="text">creator</roleTerm>
    </role>
  </name>
  <name type="corporate">
    <namePart>Parlamento Europeo</namePart>
    <namePart>Dirección General de Servicios de Estudios Parlamentarios</namePart>
  </name>
  <name type="corporate">
    <namePart>Parlamento Europeo</namePart>
    <namePart>Dirección General de Servicios de Estudios Parlamentarios.</namePart>
    <namePart>Unidad de Prospectiva Científica.</namePart>
    <role>
      <roleTerm type="text">STOA</roleTerm>
    </role>
  </name>
  <typeOfResource>text</typeOfResource>
  <genre authority="marc">technical report</genre>
  <originInfo>
    <place>
      <placeTerm type="text">Brussels</placeTerm>
    </place>
    <publisher>European Union</publisher>
    <dateIssued>September 2021</dateIssued>
    <dateIssued encoding="marc">2021</dateIssued>
    <issuance>monographic</issuance>
  </originInfo>
  <language>
    <languageTerm authority="iso639-2b" type="code">eng</languageTerm>
  </language>
  <physicalDescription>
    <internetMediaType>pdf</internetMediaType>
    <extent>97 p. ; 1 documento PDF</extent>
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  <abstract>Regarding health data, its availability and comparability, the COVID-19
pandemic revealed that the EU has no clear health data architecture.
The lack of harmonisation in these practices and the absence of an EUlevel centre for data analysis and use to support a better response to
public health crises is the focus of this study. Through extensive desk
review, interviews with key actors, and enquiry into experiences from
outside the EU/EEA area, this study highlights that the EU must have the
capacity to use data very effectively in order to make data-supporte d
public health policy proposals and inform political decisions.
The possible functions and characteristics of an EU health data centre
are outlined. The centre can only fulfil its mandate if it has the power
and competency to influence Member State public-health-relevant
data ecosystems and institutionally link with their national level actors.
The institutional structure, its possible activities and in particular its
usage of advanced technologies such as AI are examined in detail.
Policy options on how to set-up such an EU health data centre and a
common strategy for health data are put forward as ways to achieve a
public health datafication multi-level process in the EU, and create a
central coordination and support structure with advanced digital public
health functions, that bear the potential to significantly alter public
health in the EU, for smouldering public health crises such as cancer,
mental health and obesity, as well as cross-border large-scale threats.</abstract>
  <targetAudience authority="marctarget">adult</targetAudience>
  <note type="statement of responsibility">/  this study has been written by Henrique Martins of ISCTE-Lisbon University Institute and Faculty of Medical
Sciencies, UBI Portugal, at the request of the Panel for the Future of Science and Technology (STOA) and
managed by the Scientific Foresight Unit, within the Directorate-General for Parliamentary Research Services
(EPRS) of the Secretariat of the European Parliament.</note>
  <note>Reproduction and translation for non-commercial purposes are authorised, provided the source is acknowledged 
and the European Parliament is given prior notice and sent a copy.</note>
  <subject authority="">
    <topic>Sanidad digital</topic>
  </subject>
  <subject authority="lcsh">
    <geographic>Europa</geographic>
  </subject>
  <subject>
    <topic>salud pública</topic>
  </subject>
  <subject>
    <topic>datos</topic>
  </subject>
  <subject>
    <topic>salud</topic>
  </subject>
  <subject>
    <topic>EU</topic>
  </subject>
  <subject>
    <topic>centro de datos sanitarios</topic>
  </subject>
  <subject>
    <topic>estrategías</topic>
  </subject>
  <relatedItem type="series">
    <titleInfo>
      <title>EPRS Studies</title>
    </titleInfo>
  </relatedItem>
  <identifier type="isbn">978-92-846-8151-8</identifier>
  <identifier type="uri">https://www.europarl.europa.eu/RegData/etudes/STUD/2021/690009/EPRS_STU(2021)690009_EN.pdf</identifier>
  <location>
    <url displayLabel="Acceso al documento">https://www.europarl.europa.eu/RegData/etudes/STUD/2021/690009/EPRS_STU(2021)690009_EN.pdf</url>
  </location>
  <accessCondition type="useAndReproduction">Reproduction and translation for non-commercial purposes are authorised, provided the source is acknowledged 
and the European Parliament is given prior notice and sent a copy.</accessCondition>
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    <recordCreationDate encoding="marc">211013</recordCreationDate>
    <recordChangeDate encoding="iso8601">20240117092035.0</recordChangeDate>
    <recordIdentifier source="ES-MaONT">00006743</recordIdentifier>
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